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Our Son Teddy Joe Fox was diagnosed with an incredibly rare disease called CCHS (Congenital Central Hypoventilation Syndrome) in February. There are only around 1200 cases diagnosed worldwide, and almost all research funding for treatment or a cure comes from private donations. We have made it our mission to help the CCHS Network raise these much needed funds. There are many ways to donate for CCHS Day. The easiest is going directly to the CCHS Network website :
https://www.cchsnetwork.org/get-involved/donate/
So many of Teddy's friends have already been so generous with donations already. For anyone who wants to spread the word and raise funds now for research, and spread the word/awareness year round, we have created TJF CCHS Day T-shirts and Hoodies. All proceeds will go to the CCHS Network.
Supporters
Let’s find a cure!
For my favorite little CCHS warrior, Teddy Joe
For my guy Teddy Joe Fox
Bestest boy! ❤️