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The Cute Syndrome Foundation's 3rd Annual SCN8A Gathering
Hanes ComfortSoft® Tagless T-shirt
- Sizes YXS - XXXXL
- View Sizing Guide
About this campaign
Hi TCSF family!
We are planning some great events for our 3rd Annual SCN8A Clinician, Researcher, and Family Gathering in conjunction with the 2017 American Epilepsy Society meeting in Washington DC this December. At our previous Gatherings families were able to interact directly with leading SCN8A clinicians and researchers. They also learned more about the most up-to-date research and met other families raising children with SCN8A. Meeting the families in our SCN8A community is also a huge benefit to those working on SCN8A research--who have told us how much the opportunity helps drive them in their work!
This year a record number of SCN8A families have expressed interest in attending the gathering in order to form these essential personal connections and learn about the latest advances in research!
TCSF is asking you to help us raise funds to support this year's SCN8A Gathering. With your purchase of this Booster t-shirt made especially for the Washington DC event you can help make the SCN8A Gathering better than ever this year! All profits from this campaign will go towards the 3rd Annual SCN8A Clinician, Researcher, and Family Gathering. You can also help support the 3rd Annual SCN8A Clinician, Researcher, and Family Gathering by making a tax-deductable donation to The Cute Syndrome Foundation here http://www.thecutesyndrome.com/donate.html
It wouldn't be surprising if you have never heard of SCN8A Epilepsy. It is a rare disorder, caused by genetic mutations in the gene SCN8A, and it is still in the early stages of being diagnosed and understood. Our team at The Cute Syndrome Foundation is working hard to help bring SCN8A into the light, to fund the dedicated and talented researchers working to better understand it, and to support the families who are affected by this disorder.
You are part of that mission--your donations, volunteer time, and social media support are essential to our momentum.
With our partner organizations we have helped to fund a series of SCN8A projects including funding for Dr. Michael Hammer's SCN8A Registry, Dr. Miriam Meisler's SCN8A research at the University of Michigan, our SCN8A Clinician Reference Guide, and our annual SCN8A Clinician, Researcher, and Family Gathering.
In previous years The Cute Syndrome Foundation has made amazing progress with funding PCDH19 research.
We are a 100% volunteer-run organization
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Share Why You Support "The Cute Syndrome Foundation's 3rd Annual SCN8A Gathering"
Supporters
For Wyatt and all of the beautiful faces of scn8a.
For my granson, Max
For Kaitlyn Delgado and our SCN8A family
This is for my son, Taylor.
To advance SCN8A research for my daughter and all those affected,
My grandson, Mason!