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Incontinentia Pigmenti BioBank
Gildan Ultra Cotton Long Sleeve T-shirt
- Sizes S - XXXXXL
- View Sizing Guide
About this campaign
Please Help Us Help IP Families. Incontinentia Pigmenti (IP) is a Rare Genetic disorder with NO Cure and Not many answers. IP affects the skin, teeth, eyes, hair,nails and central nervous system.All funds raisedfrom the sales of these T-shirtswill be used exclusively forthe funding of a much neededIP BioBank. Your order will give Families affected by IP HOPE for their Future.(To order a Shirt in Honor of an IP Angel please include a message that you wish to send and the Full IP Family name. If we do not have the families contact information already on file we will email you directly. To make a donation only in honor of an IP Angel or to help us reach our much needed 10K goal please visit us at www.ipif.orgwe are a 501 (c) 3 private foundation and all donations are tax deductible) (For shipping outside of the USA please email ipif@ipif.org for assistance with your order)Thank You!
Incontinentia Pigmentia Rare Genetic Disorder known as IP and all those who it affects are IP Angels.Babies are being
misdiagnosed, mothers are losing pregnancies and some infants have gained their
wings. This rare disease is unpredictable and the heartache it causes is
indescribable.
Skin Rashes and Blisters ~Hair Loss, Thinning and Coarseness ~Misshaped and Missing Teeth ~Blindness and Complete Loss of Eye(s) ~Learning Disabilities ~Fine Motor Delay ~Seizures ~Strokes ~Tumors Under Nails and Ridged Nail Beds ~Bone Deformities ~ Heat Intolerance ~Immune Deficiencies ~ Central Nervous System Defaults and much, much more.
IP can affect every skin cell in the body. IP is the located on the NEMO gene.
The NEMO gene is the gateway gene to every birth defect. IP attacks the X a
girl is XX a boy XY and with out one healthy X life is not possible.
IP is usually fatal in boys and some girls have also passed because of IP. We
do not have many answers medically for this disorder and there is No Cure. Our
little ones, teens and IP adults have a 50% chance of passing their IP on and
there is no way of knowing how IP will affect each generation. IP is also
brought about spontaneously which is when there is NO Family History of this
disorder which is then called a spontaneous mutation of IP.
Please Help Us Help IP Families !
An IP BioBank will offer new hope to startups, researchers and patients.
An IP BioBank is a future for IP bringing much neededAnswers and Hope for a CURE!
IP Family Dreams can come true with an IP BioBank
"TheIncontinentia
Pigmenti Genetic Biobank(IPGB)
theHuman GeneticsLaboratoryat IGB-ABT CNR inNaples(www.igb.cnr.it/ipgb)isalargestcollection
(to date 387 DNAsamples are stored)of DNA andclinical
datafrom patients withIncontinentia Pigmenti.The financing will
allow us to build all tools to validate the DNA BioBank.
The IPBioBank would be a great opportunity for:
• all patients who, in other parts of the world can be incluse new therapeutic clinical trial project;
• all researchers who, in other parts of the world are working on this type of disease, but do not have access to a sufficient number of cases."
To learn more aboutIP and our foundation (IPIF)please visit us at www.ipif.org
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Supporters
I am buying shirts in support of my beautiful niece Jolie and in hopes answers will be found! Our IP angels deserve the very best, and I hope research will help give that to them and future generations!
My daughter who is 36 years old has IP.
In honor of our cousin Jolie Riven!
Supporting IP angel Sophie Roemhildt who will be celebrating her first birthday soon as well as all those sweet IP angels who are and will be.
Let's find some answers before the next generation starts having families of their own. I don't want my daughter to go through what I did, or worse.
Helping Melinda and Chris Gwiozdowski support Ava
Together we are strong!
For our cousin Sophie