Cure CJD - 2022 Fundraiser - Kids Sizes

CJD is a rare neurological disease caused by an infection protein called a prion. 85% of the cases are "sporadic", including Mom's, which means that no one knows why or how the prions are introduced to the brain. It took 7 long months and countless doctor appointments and tests to receive this fatal, hopeless diagnosis. We were and still are heartbroken and completely at a loss. It's still hard to fathom this all happened. CJD is a disease known to strike "one in a million". If you knew my Mom, you know she was, in fact one in a million -- a unique and giving soul, full of joie de vivre, child-like wonder, yet tough as nails and not afraid to speak her mind and stand up for what was right. Mom may have lost her battle, but we, her family, will continue to press on in the war against CJD. It is our goal to fund a research grant every year, in her memory, to further study this horrible disease. So much more needs to be done to understand this disease (how did this happen? where? when?). There are currently no treatments to slow down or reverse the progression. It is our hope that a cure will be found soon so that other families will not have to watch the light of their loved one be extinguished.